AVMs

I’m looking for others who have or have had arteriovenous malformations, or AVMs.

http://neurosurgery.ucla.edu/arteriovenous-malformation

I was diagnosed with a large AVM after a grand mal seizure, back in 2005. The wonderful doctors at UCLA destroyed most of it with embolization and stereotactic radio surgery, but i do still suffer from occasional seizures, and I get pretty shaky, pretty often… But i’m really doing great… Thrilled to still be here, really…

The reason I’m posting about it is because my dad asked me to. He served in Vietnam and was consistently exposed to Agent Orange, before and during my mom’s pregnancy. He thinks my condition might be related.

Now, I have no interest and have never had any interest in blaming anyone or anything in particular for my condition, and I’m skeptical that Agent Orange has anything to do with it. But he has a point… If nobody bothers looking, it would be hard for anyone to see… So here we are…

For others who have AVM’s, who have a parent &/or who served in Vietnam, who were exposed to Agent Orange… Chime in if you’re out there… I just wonder how many of us there are…

& good luck to all of us…